Australian Bleeding Disorders Registry
Australian governments have funded the redevelopment of the Australian Bleeding Disorders Registry
(ABDR) to provide a clinical tool for specialist staff in designated treatment centres and clinics and to
improve treatment outcomes for patients with bleeding disorders across Australia. It was implemented in
This redevelopment has been undertaken by the National Blood Authority (NBA), in collaboration with the
Australian Haemophilia Centre Directors' Organisation (AHCDO), Haemophilia Foundation Australia and all
The ABDR will be used to register all patients who require clotting factor replacement therapy, in order to
gain a better understanding of the incidence and prevalence of bleeding disorders. This information will also
be used to understand demand for, and to facilitate ordering of, clotting factor product.
Statistics currently available on people with bleeding disorders underestimate the total number requiring
access to clotting factor product. By registering your patients, you will increase the accuracy of these
statistics to ensure there is sufficient product available to meet the clinical needs of your patients.
How will this change the way I treat my patients?
It won't! Patients will continue to access treatment and clotting factor product the same way they do now.
What do I need to do?
Register your patients by completing the ABDR Patient Registration form and faxing it to your nearest
Haemophilia Treatment Centre or Bleeding Disorders Clinic. Copies of the ABDR Patient Registration Form
and a contact list for treatment centres and clinics can be downloaded from www.ahcdo.org.au.
What about patient privacy?
Only the health care team and support staff involved in providing medical services have access to the
personal information of their patients. Other authorised users only have access to limited, depersonalised
and/or summary information where all identifying information is removed to protect patient privacy.
Where can I get more information?
For more information about the ABDR and the registration of patients visit the AHCDO web site or call AHCDO
on (03) 9885 1777 or email firstname.lastname@example.org